Sunday,20 Jul 2008

Felt better today and decided to blog. Had mri scan and nerve test done for the pass few days. Scan result shows that the antibodies has switch from attacking my tummy to my brain. Now my artery in my right brain is inflammed.

That is why I have been having bad headache, bluring of vision and losing feeling on my left side of the body. Gosh..I cried non stop when I heard this news from my doctor.... Is such a scary thing. He says if I have come in later, my blood vessel would have burst and resulted in stroke. Lucky I discover it early......

I am frightened as well as in a loss...He mentioned that my flu viral infection might have trigger the antibodies activity as I did not rest well during the period to recover properly.

Had my $5000 rituximab infusion done yesterday. I guess Dr Koh feels is critical for me as it has start attacking my brain. I felt feverish throughout the infusion. Thou not as bad side effect as he has mention.

Rituximab has kill all my b-cells including all the antibodies. Which means I am very weak now and prone to infection as I do not have any antibodies to fight off germs....Hoever, the B-cells will regenerate slowly and it will then be time for my infusion....

I guess now is a time for me to make a choice to drop my current stressful job and find a normal no stress 9-6pm admin job.....so that I can live my life happily...

Hopefully my KT is supportive of this....as he was never supportive in the past.....